The "Disability Dongle": Why Silicon Valley Hates Me and You

sightlessscribbles.com

163 points by calcifer 6 hours ago


TulliusCicero - 4 hours ago

While I can understand the frustration and the author makes some good points, a lot of the anger feels oddly misplaced.

Yes, engineer types want to solve problems with inventions rather than overhauling the entire nation's infrastructure. Maybe, just maybe, that's because inventing something is actually within their grasp, whereas wholesale replacing every civil engineer and architect in the country isn't? Or replacing every building and road regulation and the politicians who put them there?

It reminds me of the people in self-driving car threads complaining that the billions should've gone to transit. Sure, spending more on transit is a good idea, but it's not the tech companies' fault that it's perennially underfunded, it's politicians and the voters who put them there.

scottlamb - 4 hours ago

The author is seeing that it's easier for one team to get backing (VC money, course credit, design awards, TED talk applause, etc.) for "solving" an accessibility problem than for us to enforce that entire industries follow good accessibility practices in new work and retrofit existing work. In theory industry-wide enforcement is the sort of thing legislation like the ADA solves, but obviously that hasn't been completely effective. Not sure how to fix it.

There was a subthread recently complaining about password managers and their UX problems. These aren't aimed specifically at "disabled" users, but I think it's a similar situation. We can't reliably enforce good standards for sign-in (whether that's just setting the autofill attribute correctly and choosing the correct event handlers for Javascript validators or something far more ambitious), so we expect a password manager to just deal with the web as it is. IMHO they work remarkably well given that constraint, but it's not optimal overall.

giantg2 - 3 hours ago

The author is simultaneously correct and incorrect.

The author is correct that simple and cheap changes such as ramps and door knobs are the logical fixes. And yes, based on personal experience, companies hate disabled people at the first sign that they will be an inconvenience to the company.

However, nature has no such things. If you enjoy nature and the outdoors, then user-specific equipment can provide capabilities not available through cheap alternatives. The prototypes shown are always marketing with some flair to it. Yes, the noise and bulk are terrible, but proof of concept can lead to improvements over time - eg you're looking at a some no-name competitor to the Model T (prototype suit), just imagine what the 2026 civic will look like (suits 75 years from now).

devinprater - an hour ago

Totally blind person. I once had this bright idea that the blind community could fix Linux into our perfect platform. I don't care all that much anymore about anything being fixed, foss or not. FOSS is everyone scratching their own itch, and if a developer who can see creates a program that scratches his itch but isn't accessible, but his itch is scratched, why would he then spend time fixing it up for the one blind Linux user that made an issue on Github about it?

For non-FOSS products, it's even worse. There is no way to tell Amazon that, for the past several months, their library view for Kindle on iOS was inaccessible to VoiceOver, with the books having no accessibility label, and the only way one can tell what book they're about to open is through VoiceOver's tiny on-device image describer model. Of course, in iOS 27 (beta currently) this is improved, but it shouldn't have to be. The last few versions of Kindle has begun fixing this, but last time I tried, about a week ago, it could easily break even just by my scrolling the view a few times.

So I don't even bother anymore. If Google can stand having poor Braille support on Android, fine, I'll use an iPhone. If Apple can stand having awful Google Docs support, which I use at work, on MacOS, I'll use Windows or even Linux where it works fine. If an image isn't described, I will put it through AI. If a page doesn't work well with a screen reader, I'll send it through AI too. If I want to play a video game where 99% of them do not have spoken menus, but I can enjoy the actual gameplay, I'll ask AI which menu option I'm on.

I've come to feel that life is so miserable when I and only a few others fight and fight for accessibility. If it works, it only works for a moment. So I just lean on AI because it can "see" a lot better than I can. Besides, people have used AI to make accessibility mods for Final Fantasy 1 through 6, the pixel-remaster versions. So when terminally angry people come at me for my use of AI, I just don't care anymore. Let them go blind and see how it feels.

ggreer - 3 hours ago

I thought the idea behind exoskeletons and fancy wheelchairs was that they allow handicapped people to go more places, not to substitute for better infrastructure. I haven't seen any of the companies behind these devices claim that they make such improvements obsolete. And as the post mentions, such infrastructure is useful for anyone with luggage, a stroller, or a hand truck.

And yes, the cost of such devices is high today, but that's true of any new technology. The first print reading devices were huge machines that cost tens of thousands of dollars. Now the technology is free on your phone. Early hearing aids were bulky, expensive, and not much better than an ear horn. Now they're affordable, compact, and have handy features like bluetooth connectivity. My guess is that most of these prototypes will fizzle and go nowhere, but some will succeed, and the lives of disabled people will be improved by them.

Edit: Pangram says the entire post is written by AI. I've flagged it for misrepresenting the author. https://www.pangram.com/history/06093378-dcca-42d8-b683-5ed7...

overgard - 2 hours ago

The real problem IMO is for most SV companies, the audience is the investors and the press, not the actual customer. Which I guess kind of makes sense structurally -- if the idea is to grow fast and exit, then you gotta know who butters your bread, but I think it's bad structurally for problem solving and building sustainable businesses. I know in the past "small" businesses got kind of denigrated as "lifestyle" businesses, but I think we structurally need more funding around things that solve real problems but aren't going to "CHANGE EVERYTHING!!!" and maybe only end up worth a few tens of millions instead of billions or trillions.

calcifer - 6 hours ago

> I don’t need a stair-climbing wheelchair that costs $30,000 and requires a maintenance crew. I need better doorknobs and/or a ramp. But a ramp is boring. You can't make investors have a hard on for a ramp that doesn't connect to the cloud. You can’t give a TED Talk about a ramp. You can’t get venture capital funding for a slightly wider doorframe.

serf - 2 hours ago

All of the legislation and regulation and infrastructure in the world is not going to get rid of stairs everywhere.

Medi cal, medicare, and private insurance have all chipped in for my ramps, but none of them will touch something like an iBot chair with a 50 ft pole because it has ambiguous insurance coding associated to it rather than being a normal wheelchair.

So.. In other words, what's the problem? People are buying the high tech gimmicks either out of pocket or through equally spotty VA coverage.

The US has systems in place to aid the purchase of ramps for those in need and offers ample opportunity to sue businesses into bankruptcy for getting any ADA stuff wrong.. what's the demand exactly? It seems like "engineers shouldn't be so creative" to me, but the reality is that they should work on stuff they're interested in rather than some abstract civic duty, assigned unpassionate work is how you build crap.

-guy in a wheelchair

Drakexor - 3 hours ago

The author seems to be screaming into the void here. The task of rebuilding infrastructure is mountainous compared to attempting new technological solutions.

I do agree with his rant about clean and semantic HTML being nessecary for accessibility. It's too often overlooked (as I scramble to check my sites for alt-text on images)

boscillator - 3 hours ago

> You can't make investors have a hard on for a ramp that doesn't connect to the cloud.

Someone more inclined toward fraud than me should figure out how to make a cloud connected ramp as a way to get VCs to fund more ramps.

Dylan16807 - an hour ago

Every time I see someone complain about the idea of these fancy wheelchairs as a terrible distraction I think of Michael Kaplan's blog, Sorting It All Out. He had many good things to say about the iBot wheelchair and he was devastated when it got discontinued in 2009 (looks like it's back more recently).

axus - an hour ago

While searching for that Telepathy article, I found this which fits his example: https://neuralink.com/updates/a-year-of-telepathy/

ppedra - 2 hours ago

Wow, that`s very true... > My disability is not a tragedy of biology. It is a failure of infrastructure.

Everybody is different. Tall, short, strong, week, two legs, one leg, short sighted or blind. So it makes a lot of sense to point (as a mistake) that our infrastructure favors one type over the others.

> the "Checkout" button is labeled "Button_Graphic_v2_Final"

This is a very good point.

giardini - 31 minutes ago

TFA:

"I don’t need a stair-climbing wheelchair that costs $30,000 and requires a maintenance crew. I need better doorknobs and or a ramp."

Author fails to realize that "better doorknobs and or a ramp" would incur a social cost of billions or more (even w/o adding the social cost tied to legislation, legal costs, and maintenance) as compared to his imaginary $30k "silicon dongle". That's w/o considering such questions as whether I (and all other taxpayers) should pay for a doorknob we don't need but he does. We might be more willing to buy him a SpaceX rocket and send him into orbit around the Sun.

He's a pissed-off and handicapped fellow. I get that. And current society is (or once was) one that rewards people for solving their own problems instead of complaining. This may no longer be true: social media, gofundme, the metoo movement, etc. have moved the dial so that formerly "helpless" bitching can be quite rewarding, but I digress. Perhaps someday we'll be so wealthy that every individual's cares and needs are provided for. But we're not there yet.

So if I were him I might do something like go into business designing and marketing a better doorknob opener for the handicapped instead of complaining no one gives a shite.

FWIW here's some SOTA at a $30 price-level:

https://www.caregiverproducts.com/handy-hook-door-opening-ai...

Got to admit that looks pretty "iffy" AFA opening doors, more like a personal defense weapon. In any case it might get you labelled as "Captain Hook" at the grade school. OTOH its always good to have respect, if not reverence. Anyhow, its a starting point and you can only do better!8-)

fervor - 3 hours ago

I’m inclined to think of Apple, who seem to bake accessibility deeply into their products. From my point of view, maybe their investment in accessibility has led to emergent breakthroughs in hardware design. This is just my impression however

fellowniusmonk - 4 hours ago

I have a buddy who did his Human Factors PHd at wright state/wright patt nearly 15 years ago.

"Tech people" have a lot of lies they believe, about disabilities, about valid addresses, everything.

When he told me that schools for the blind train their student to fact check things like directions and not simply rely on a single source while navigating new terrain it clicked for me that the sighted have no clue and sympathy is more honest and less presumptive/simulative than empathy.

But to be sympathetic you have to listen to actual user feedback and do actual observation, with empathy you just get to use your imagination to put yourself in their shoes.

At least for some definition of sympathy and some definition of empathy.

HoldOnAMinute - 3 hours ago

>> You can’t give a TED Talk about a ramp.

>> You can’t get venture capital funding for a slightly wider doorframe.

>> Concrete is not "disruptive."

Well, not with that attitude.

You simply need these 3 things:

1. A revenue subscription model

2. Execute at massive scale by leveraging AI

3. An advertising model

Now you can change the world

kg - 2 hours ago

The imbalance is profound. I once tried to find a lawyer who could handle getting accommodations for a visually impaired person I knew. In practice, we probably just needed them to draft a sufficiently stern letter notifying the operator of their responsibilities under the ADA and it would have eventually gotten handled.

I spent a while trying to find law firms that specialized in this. If you do this kind of search 99% of the results are for law firms that specialize instead in defending companies against ADA suits and helping them evade their responsibilities.

I eventually was able to find exactly one law firm via contacting the bar. They weren't interested in talking to me - they said the person with the disability would need to contact them directly and pay out of their own pocket.

Years later that website still isn't accessible.

arjie - an hour ago

A classic in the genre of misunderstood agents. This is such a common thing these days I really wonder at it.

"Why do we have to build Electric Vehicles? Why don't we just build more trains?"

There's no 'we' here. 'We' are not doing anything. 'You' are sitting writing a blog. 'I' am writing a HN comment. 'They' are building EVs. You might as well say "Why do we want to build a dumpling store here? I never asked for that. I wanted Thai food" when someone else is building a dumpling store. It's not a 'we' decision.

The fact of the matter is that you can't redirect my money and effort to your goals. You can maybe find alignment between my objectives and your objectives, and when I try to find such alignment you can work with me or you can reject me. But we're free individuals. I'm not going to make you your Thai food. I'm going to make Chinese food. And if you want some, you can eat some by paying me, and if no one wants some I go out of business and it sucks for me.

I neither hate you nor love you. And you neither hate me nor love me. We are strangers to each other and where our interactions align we can work with each other; and where they don't we can't. The world is full of other people with other objectives. Some are opposed and some are aligned.

In the words of the Spiderman antagonist Sauron:

> I don't want to cure cancer. I want to turn people into dinosaurs

And no matter what, I'm not going to try to work with anyone who's going to jump my case the moment the cosine of our vectors is not precisely 1. It never surprises me when all these perpetually angry people find themselves with no allies, because a desire to coordinate is fairly built-in to human nature and people recognize defectors from that framework easily and stop attempting coordination with habitual non-coordinators.

tengbretson - 2 hours ago

The author's definition of a "Disability Dongle" perfectly describes the early versions of motorized wheelchairs. Why is it such an obvious conclusion that we need remake the world to be compatible with the previous generation of disability dongle instead of building the next? At the very least, couldn't we do both?

throwaway7783 - 2 hours ago

While it is frustrating, I do think disability is a bug (I have some). Just like I take medicines to manage my condition, or use glasses to read better (I don't ask everything to be made bigger - the text on pages in a book - I use an aid) - I really believe technology is the answer to many issues. Implementation is always political/controlled by vested interests, but throwing innovation and Silicon Valley under the bus is not the answer. I'd rather hope the blender blending brick today will be as silent as an electric car one day.

Sometimes the world just is, and I will take whatever technology can give me to handle it.

nsxwolf - 3 hours ago

There's already a lot of ramps, there's probably never going to be a lot more ramps, I think I'd like to have some technology to assist me with edge cases.

Henchman21 - 2 hours ago

Could you make the text bigger on mobile? At present I get about one word a line. But clearly we can do better… see if you can get it to just one letter!

taeric - 2 hours ago

This feels like an excessive hate of "Silicon Valley" that is just awkward. Yes, it turns out it is easier to do easier tasks. No, it is not cheaper to pound the table with claims that all infrastructure should be better.

busterarm - 3 hours ago

One company I was at wouldn't even keep basic first aid supplies stocked.

Facilities succesfully made a big push to get a bunch of people CPR/AED training, especially because it was free. I then made the obvious point that we had no AEDs and should get some. Absolute crickets.

kmeisthax - 2 hours ago

...Is "disability dongle" the new "autonomous transit pods"?

For context, San Francisco being a city with billionaire tech oligarchs, lots of traffic, and OK but not great transit means there's a LOT of rich people who want to fix traffic by way of almost literally reinventing the wheel.

We already know how to move lots of people to a particular destination very quickly: some variation[0] of a bus or train on dedicated right-of-way. The problem is that America is specifically engineered to make operating transit unprofitable outside of high density urban areas, acquiring land for that right-of-way in high density is astronomically expensive, and increasing density limits to break this chicken-and-egg problem is a political nightmare in most places.

This is exactly the kind of problem Silicon Valley hates having to solve because it is, in a sense, the enemy. A good chunk of Big Tech got drunk on Ayn Rand, and transit in particular presents a problem that Objectivist philosophy is unwilling to engage with. To solve it requires both negotiating with the urban planning equivalent of a Soviet central planner and long-term subsidy through coercive taxation.

The pitch for all these projects is ultimately a complicated heavy engineering project to make a train seem less like a train and more like a tech product. Think like the Hyperloop, a concept for a vaccum-sealed tube in which "pods" could be shot through at high speeds. This doesn't need to exist, heavy rail can absolutely go 200mph, we can already bury it underground, and there is no need to have individualized vehicles aside from a mistaken belief that Americans are allergic to sharing space with other Americans.

The one version of this that actually got built is the Vegas Loop, which despite the name and the hype has nothing to do with Hyperloop and was just Teslas driving down a one-way tunnel. All the hype around it delayed actual transportation. As I hinted at above, federal politicians[1] in America would really rather you not take a train. Americans themselves will happily ride them[2], but getting local funding for it is a battle. And all the talk of hyperloops and pods made local politicians hold off on fighting that fight for a good decade, so there's a lot of transit we're missing, because the stupid sci-fantasy ideas never panned out.

[0] I am being very broad here - France has it's obsession with rubber-tired trains, Mexico City has an extensive BRT network that provides metro-like service frequencies.

[1] Joe Biden excluded

[2] We abuse the shit out of commercial aviation to do things high-speed trains can do better, so it's not like we're afraid to share space. The only thing is that Americans don't know how to stay quiet on a train or plane - but that doesn't make the train unprofitable or impractical.

hobonation - 3 hours ago

[dead]

fluoridation - 3 hours ago

>every time I see one of these vapid videos.

>And watching the video,

>I am blind

Um...

EDIT: Actually, the post reads as if two different people wrote it. The first half doesn't mention anything about blindness, and the second half doesn't mention anything about wheelchairs. But there's only one credit, so I don't know what's going on.